Hope and trust in times of Zika: the views of caregivers and healthcare workers at the forefront of the epidemic in Brazil

Página do item simplificado
dc.contributor.authorSimas, Clarissa
dc.contributor.authorPenn-Kekana, Loveday
dc.contributor.authorKuper, Hannah
dc.contributor.authorLyra, Tereza Maciel
dc.contributor.authorMoreira, Maria Elisabeth Lopes
dc.contributor.authorAlbuquerque, Maria do Socorro Veloso de
dc.contributor.authorAraújo, Thália Velho Barreto de
dc.contributor.authorMelo, Ana Paula Lopes de
dc.contributor.authorMendes, Corina Helena Figueira
dc.contributor.authorMoreira, Martha Cristina Nunes
dc.contributor.authorNascimento, Marcos Antonio Ferreira do
dc.contributor.authorPimentel, Camila
dc.contributor.authorPinto, Marcia
dc.contributor.authorValongueiro, Sandra
dc.contributor.authorLarson, Heidi
dc.date.accessioned2024-10-22T19:53:54Z
dc.date.available2024-10-22T19:53:54Z
dc.date.issued2020
dc.description.abstractThis article investigates how hope and trust played out for two groups at the forefront of the Zika epi- demic: caregivers of children with congenital Zika syndrome and healthcare workers. We conducted 76 in-depth interviews with members of both groups to examine hope and trust in clinical settings, as well as trust in public institutions, in the health system and in the government of Brazil. During and after the Zika epidemic, hope and trust were important to manage uncertainty and risk, given the lack of scientific evidence about the neurological consequences of Zika virus infection. The capacity of healthcare workers and caregivers to trust and to co-create hope seems to have allowed relationships to develop that cushioned social impacts, reinforced adherence to therapeutics and enabled informa- tion flow. Hope facilitated parents to trust healthcare workers and interventions. Hope and trust appeared to be central in the establishment of support networks for caregivers. At the same time, mistrust in the government and state institutions may have allowed rumours and alternative explana- tions about Zika to spread. It may also have strengthened activism in mother’s associations, which seemed to have both positive and negative implications for healthcare service delivery. The findings also point to distrust in international health actors and global health agenda, which can impact com- munity engagement in future outbreak responses in Brazil and other countries in Latin America.
dc.identifier.citationSimas C, Penn-Kekana L, Kuper H, Lyra TM, Moreira MEL, de Albuquerque MDSV, de Araújo TVB, de Melo APL, Figueira Mendes CH, Nunes Moreira MC, Ferreira do Nascimento MA, Pimentel C, Pinto M, Valongueiro S, Larson H. Hope and trust in times of Zika: the views of caregivers and healthcare workers at the forefront of the epidemic in Brazil. Health Policy Plan. 2020 Oct 1;35(8):953-961. doi: 10.1093/heapol/czaa042.
dc.identifier.otherDOI: 10.1093/heapol/czaa042
dc.identifier.urihttps://dspace.inc.saude.gov.br/handle/123456789/524
dc.language.isoen
dc.publisherHealth Policy and Planning
dc.subjectHopeen
dc.subjecttrusten
dc.subjectZika virusen
dc.subjectmicrocephalyen
dc.subjectcongenital Zika syndromeen
dc.subjectcaregiversen
dc.subjecthealthcare workersen
dc.titleHope and trust in times of Zika: the views of caregivers and healthcare workers at the forefront of the epidemic in Brazil
dc.typeArticle
Arquivos
Original bundle
Agora exibindo 1 - 1 de 1
thumbnail.default.alt
Nome:
Simas C et al_Health Policy and Planning.pdf
Tamanho:
84.83 KB
Formato:
Adobe Portable Document Format
Descrição:
Baixar
License bundle
Agora exibindo 1 - 1 de 1
thumbnail.default.placeholder
Nome:
license.txt
Tamanho:
1.71 KB
Formato:
Item-specific license agreed to upon submission
Descrição:
Baixar
Coleções
Produção Docente