Brazilian breast cancer patient- reported outcomes: What really matters for these women

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dc.contributor.authorSilva, Aline Silveira
dc.contributor.authorFrança, Ana Cláudia Wekmuller
dc.contributor.authorPadilla, Matheus Piccin
dc.contributor.authorMacedo, Luana Schroeder
dc.contributor.authorMagliano, Carlos Alberto da Silva
dc.contributor.authorSantos, Marisa da Silva
dc.date.accessioned2024-10-08T16:49:37Z
dc.date.available2024-10-08T16:49:37Z
dc.date.issued2022
dc.description.abstractIntroduction: Patient-Reported Outcomes (PRO) are directly reported by the patient without interpretation of the patient’s response by a clinician or anyone else and pertains to the patient’s health, quality of life, or functional status associated with health care or treatment. It can provide patients’ perspectives regarding treatment benefit and harm beyond survival and are often the outcomes of most importance to patients. This study aims to describe and analyze outcomes reported by Brazilian women diagnosed with breast cancer and rank the most important attributes for these patients. Methods: Observational descriptive study composed of exploratory interviews followed by online questionnaires applied to a convenience sample of women diagnosed with breast cancer. Results: Twelve women were interviewed to explore the main outcomes and preferences about their treatments, such as the most common side effects and the most impacted aspects of life after diagnosis and BC treatment. Psychological, emotional, and sexual impacts were frequently described as impacted aspects. Fifty-three women, from all the five Brazilian regions, answered the online questionnaire. Following an order of importance ranking, the following outcomes were chosen, respectively: overall survival, progression- free survival; and quality of life. The treatment effects that were considered less important, among this sample, were pain and adverse events. Conclusions: Thinking about expanding the therapeutic quality of users, it is essential to take into account the experiences of patients. PRO is a trend in current research to achieve this goal, in order to influence the decisions of HTA agencies about the importance of valuing outcomes that affect patients’ lives.
dc.identifier.citationSilva AS, França ACW, Padilla MP, Macedo LS, Magliano CADS, Santos MDS. Brazilian breast cancer patient-reported outcomes: What really matters for these women. Front Med Technol. 2022 Nov 21;4:809222. doi: 10.3389/fmedt.2022.809222.
dc.identifier.otherDOI: 10.3389/fmedt.2022.809222.
dc.identifier.urihttps://dspace.inc.saude.gov.br/handle/123456789/476
dc.language.isoen
dc.publisherFrontiers in Medical Technology
dc.subjectpatient-reported outcomesen
dc.subjectPROen
dc.subjectPROsen
dc.subjectpatient preferencesen
dc.subjectpreference studyen
dc.subjectbreast canceren
dc.subjectpatient perspectiveen
dc.subjectpatient experienceen
dc.titleBrazilian breast cancer patient- reported outcomes: What really matters for these women
dc.typeArticle
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